PATIENT
SAFETY REGISTRY
One of our Foundation’s primary and most
ambitious objectives is to create the Patient Safety Registry to
capture as much information as possible about patient safety research
and best practices. Designed as an evolving massive databank of
important databases related to patient safety, which will be directly
or indirectly linked to one another within our Foundation and other
sources of information, the Registry is a repository of vast data about
medical errors, close calls, standardized medical indicators, best
practices, and personal stories and experiences. However, our original
concept of this Registry has been expanded to include a number of other
databases, including those related to unused and expired medications
and innovative solutions in patient safety, all of which can be used to
develop preventive measures and improve diagnostic procedures and
accuracy.
Information from the Patient Safety
Registry will be used primarily for research purposes and the
development of preventive measure and interventions to improve patient
safety. Some aggregated data, such as descriptive analyses, will
be available and accessible to the public as an important resource and
service. Other data will be available only through pay-for-access
or membership arrangement.
The first three databases (registries) of
the Patient Safety Registry have been developed, and we are actively
collecting and compiling information.
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Unused and Expired
Medicines Registry—The first national database of unused and
expired medicine collected from various community-based drug return
programs.
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Registry for Hand
Functionality—A seminal database of motor and sensory
measurements of the hand and wrist that contains unique signatures for
various hand and wrist disorders, including carpal tunnel syndrome
(CTS) and Fibromyalgia syndrome(FMS).
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Share Our
Stories© (S.O.S.) Registry—An online database compiled from
the field that includes personal stories from healthcare providers,
patients, and families--stories of recent positive and negative medical
experiences, including their observations, satisfaction, and lessons
learned.
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